BAYADA News blog

BAYADA Pediatrics Renews Partnership with Cure SMA for 6th Year

Posted by Lisa Weinstein

Jun 7, 2017 3:20:24 PM

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BAYADA staff, clients, and their families participate in the Cure SMA Walk-N-Roll

In September, 1997, Tara and Jim Montague were thrilled  to welcome their daughter Mary to the world. However, when they brought their baby home, the couple noticed she was not meeting her developmental milestones. After numerous tests and doctor visits, Mary and Jim received news no parent wants to hear. Their precious daughter was diagnosed with a rare genetic condition called cerebrocostomandibular syndrome, characterized by malformations of the mouth, jaw, and tongue and abnormal development of the ribs.

As their daughter grew, new symptoms emerged, and they suspected that an additional medical condition was the cause. Sure enough, when Mary was 8, a neurologist confirmed the couple’s worst fears. Ttheir daughter had spinal muscular atrophy (SMA), an inherited disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. 

To enhance nursing care at home for Mary and the hundreds of patients with SMA, BAYADA Pediatrics, a BAYADA Home Health Care specialty practice, is proud to announce its 6th year of partnership as a national sponsor of Cure SMA. The non-profit organization is dedicated to supporting families affected by the disease and funding research for new treatments and, eventually, a cure.

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Topics: Cure SMA, SMA, Spinal Muscular Atrophy, Pediatric Nurses, Pediatric home care

BAYADA Pediatrics Nurse Published in International Medical Journal

Posted by Lisa Weinstein

Jun 1, 2017 3:39:20 PM

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BAYADA Pediatrics Director of Special Program Development Deb Boroughs, RN, MSN, authored an article that was published in the national online medical journal, Children. The article, ”An Evaluation of a Continuing Education Program for Family Caregivers of Ventilator-Dependent Children with Spinal Muscular Atrophy (SMA)”, appears in a special issue on complex health and care needs. BAYADA Pediatrics, a specialty practice of BAYADA Home Health Care, provides nursing care at home and school for children with catastrophic medical needs.

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Topics: SMA

BAYADA Receives Clinical Care Research Grant from Cure SMA

Posted by Lisa Weinstein

Jan 27, 2015 10:22:00 AM

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Parents like Al Freedman, pictured with his son Jack, who has SMA, will benefit from a Cure SMA grant that will allow BAYADA Home Health Care to provide simulation lab training to families of children with SMA.

 

Pilot program will train family caregivers of those with spinal muscular atrophy

Cure SMA, a national non-profit organization dedicated to the treatment and cure of spinal muscular atrophy (SMA), has awarded BAYADA Pediatrics, a specialty of BAYADA Home Health Care, with a $30,000 clinical care grant. The funding will allow BAYADA to develop a pilot study involving hands-on, simulation-based training to help family members care for the complex medical needs of their children with SMA.

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Topics: children with special needs, Spinal Muscular Atrophy, Pediatrics, children with disabilities, SMA, FSMA, Pediatric home care

BAYADA Pediatrics Partners with Families of Spinal Muscular Atrophy

Posted by Lisa Weinstein

Aug 2, 2013 9:18:00 AM

Client Jack Friedman, with father Al and BAYADA President Mark Baiada

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Topics: children with special needs, Home Health Care, The BAYADA Way, Spinal Muscular Atrophy, Pediatrics, Mark Baiada, school, children with disabilities, SMA, Home Health

Hope during Spinal Muscular Atrophy (SMA) Awareness Month

Posted by BAYADA Home Health Care

Aug 14, 2012 1:59:00 PM

Jack Freedman has accomplished a great deal in his 17 years. He is a published author and has presented at health care conferences. He has mastered the use of technology that allows him to communicate with his friends and family. And, he has defied the odds set by his physicians when he was born with spinal muscular atrophy (SMA), an often fatal disease that destroys the nerves controlling voluntary muscle movement.

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Topics: Home Health Care, Spinal Muscular Atrophy, SMA

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