Meet LaMondré Pough, a man who shows us what it means to live authentically. Diagnosed when he was a toddler with spinal muscular atrophy (SMA)—a rare genetic condition that
LaMondré has been living on his own since he was 23, building a life rooted in purpose, community, and his love for music. Now at 52, he has co-founded an empowerment organization for people with disabilities called Billion Strong, and he currently works as a leadership coach and podcast host, inviting others to live authentically no matter the obstacles.
For LaMondré, support is essential. He cannot make controlled movements from the neck down. His BAYADA personal care team helps with what he needs on a daily basis—things like bathing, dressing, meals, and staying active. With their support, he can focus on what matters: living life on his terms and making his mark on the world.
Moving Forward with Hope and Innovation
Medical advances are radically changing expectations for people living with SMA. As a child, LaMondré was given a life expectancy of five years. Until recently, treatment wasn’t even an option. Then, in 2016, gene therapy began to open new possibilities.
“I didn’t think I would ever see a treatment for SMA in my lifetime. Now, all bets are off,” LaMondré shares.
Gene therapy doesn’t cure SMA, but it has made LaMondré’s condition more stable. By making up for a missing protein, the treatment has slowed down his muscle weakness. He’s watching with excitement as researchers work on more therapies, now aiming for muscle regeneration.
“A lot of people who really care are doing amazing work in the field of rare diseases,” he adds. “We’re not talking about jumping out of my chair and running around. But even small gains make a big difference, giving people with SMA more stamina and independence.”
The Value of a Support Network
LaMondré’s story shows the transformative power of a reliable support system. His BAYADA care team helps with daily tasks, but as he says, their support goes much deeper.
Aides are there to:
“My personal care aides empower my life. They help me live my purpose and make an impact on this world.”
This foundation lets LaMondré focus his energy on outreach, creativity, and his own growth.
Finding Joy and Connection
For LaMondré, joy is about staying tuned into his faith and the people and things he loves—especially music.
“I am a live music person. I love concerts. I love singing. I just love that whole exchange—it opens me up. Music is joy for me. Anytime I can get to it, I’m happy.”
His energy around music is contagious. Whether it’s his last Tony! Toni! Toné! concert, Raphael Saadiq’s next solo show, or the simple act of singing at home—every day, karaoke-style—these moments bring perspective and maintain that joyful connection.
Advice Rooted in Experience
Throughout his personal and professional journey, LaMondré has picked up some practical insights that ring true for anyone, no matter their circumstances. He says:
Encouragement for Every Reader
LaMondré points to books like The Hospitality of Need by Kevan Chandler as a reminder that reaching out for help isn’t a burden—it’s a positive opportunity to connect with others.
For him, caregiving goes beyond routine—it builds trust, relationships, and shared purpose. His journey is about more than overcoming obstacles. It’s about hope, determination, and building a meaningful life.
If you’re facing challenges, LaMondré’s story reminds us that our goals are always within reach, and each day offers a new chance to live authentically.
If reading this sparked something for you, consider sharing LaMondré’s story or reflecting on your own sources of resilience. Sometimes, one story can be the encouragement someone else needs.
Reach out to find your BAYADA support system here.